Table 3 Scale structure for the proposed EORTC QLQ PRT20 module
Scale | Question |
Bloating and Gas | Q31. Have you had a bloated feeling in your abdomen? |
Bloating and Gas | Q32. Were you troubled by passing wind / gas / flatulence? |
Bloating and Gas | Q33. Have you had excessive gurgling noise from your abdomen? |
Leakage | Q34. Have you had any unintentional release (leakage) of wind or mucous? |
Leakage | Q35. Have you had any unintentional release (leakage) of liquid stools? |
Bowel Control | Q36. Have you needed to get up at night to open your bowels? |
Bloating and Gas | Q37. Have you had abdominal pain or cramping not related to a bowel movement? |
Pain | Q38. Have you had pain or cramping in your rectum (deep inside the back passage)? |
Pain | Q39. Have you had pain /discomfort around your anal opening (back passage)? |
Pain | Q40. Have you had bright blood in your stools? |
Bowel Control | Q42. Have you been unable to wait 15 min to open your bowels? |
Bowel Control | Q43. Have you had the feeling of being unable to completely empty your bowels? |
Bowel Control | Q44. Does passing water cause your bowels to act immediately? |
Emotional Function/Lifestyle | Q46. Have you had difficulty going out of the house, because you needed to be close to a toilet, because of bowel problems? |
Emotional Function/Lifestyle | Q48. Did your treatment restrict the types of food you can eat due to your bowel problems? |
Emotional Function/Lifestyle | Q49. Did you worry about your bowel problem? |
Emotional Function/Lifestyle | Q50. Did you feel embarrassed by your bowel problem? |
Emotional Function/Lifestyle | Q51. How unhappy would you feel if you lived the rest of your life with your bowel habit as it is now? |
Single Item questions – not included in item scale testing | |
Diarrhoea Medication (Single item) | Q52. Have you needed to take medication to control diarrhoea? |
Bowel openings in 24 h (Single item) | Q53. What was the highest number of times you had to open your bowels in any 24 h period? Please indicate number in box |
Requesting more assistance (Single item) | Q54. Would you like more assistance to manage your bowel problem? (optional question) |