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Table 2 Response patterns for qualitative follow up questions

From: International validation of the EORTC QLQ-PRT20 module for assessment of quality of life symptoms relating to radiation proctitis: a phase IV study

Time

Valid response N’s to items: Median (range)

Questions

Time to complete

Received Help

Confusing questions

Upsetting questions

<  10 min

10–15 Min

>  15 Min

No

Yes

No

Yes**

No

Yes

T1

261 (254–281)

175

66

40

220

34 (30 = family, 4 health professionals)

228

34 (Q42 n = 6; Q43 n = 3; Q51 n = 3; Specific to bowel questions n = 8; other questions n = 2 or less)

253

6 (Q51 n = 2, all others singletons)

T2

249 (242–265)

174

60

31

220

22(15 explicitly ref., friends or family, others no additional info)

222

25 (Uninformative affirmatives n = 6; C30 questions n = 4; questioning bowel questions n = 3; Q41 n = 3; Q 51 n = 3)

243

2 (Q51)

T3

243 (240–255)

154

79

30

213

26 (13 family, 3 health professionals, others no additional info)

220

25 (Uninformative affirmatives n = 6; C30 questions n = 5; questioning urinary issues n = 2; Q41 n = 2; Q51 n = 3)

238

5 (Singletons on Q32, 42, 43 & 51, uninformative affirmative n = 1)

T4

233 (229–245)

150

69

26

214

15 (10 family; others no additional info)

225

4 (Q51 n = 2; others singletons for Q49, 52, 54)

225

4 (Q51 n = 2; singletons for Q 49, 50, 52 & 54)